07/29/2025
Hey guys you are all aware of the situation our family is facing with our two beautiful granddaughters. We received the initial results of their annual bone marrow biopsies a couple of days ago and the results were concerning for both of them. We’ll know more on August 4th. We are on a mission to raise $2 million to fund a gene therapy project that is showing unbelievable results. The only thing standing in the way of a possible cure within a year and a half is funding. For any of you who have already donated, we want no money, but we want your help. Please reach out and pass on this link to anyone who could afford to make any kind of donation, post it on your social media, it all helps. The only way we get this done is to reach out to all our friends and family for help.
http://secure.childrenshospital.org/goto/RareLifeMom
Thanks so much in advance.
John and Barbara
