Delhi Association of Muscular Dystrophy ,DAMD

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Delhi Association of Muscular Dystrophy ,DAMD your satisfaction is our Priority

26/11/2024
10/10/2023

"Your unwavering dedication to our NGO's mission is truly remarkable. You are the heart and soul of our team, and your s...
02/10/2023

"Your unwavering dedication to our NGO's mission is truly remarkable. You are the heart and soul of our team, and your selfless commitment to making the world a better place is an inspiration to us all. Thank you for your tireless efforts and for being the driving force behind the positive change we're creating together. Your passion and hard work are making a real difference in the lives of those we serve. Keep up the incredible work!" 🌟🙏

We are excited to announce a special event organized by DAMD, aimed at raising awareness and providing support for indiv...
29/08/2023

We are excited to announce a special event organized by DAMD, aimed at raising awareness and providing support for individuals living with Muscular Dystrophy and Cerebral Palsy. This event is scheduled to take place on September 17, 2023, and we invite everyone in the community to join us in this endeavour.
Event Details:
Date: September 17, 2023
Time: 9:00 A.M. to 4:00 P.M.
Venue: Karawal Nagar Near Jeewan Jyoti School, Delhi 110094
Event Highlights:
1.Educational Workshops: Gain insights into Muscular Dystrophy and Cerebral Palsy through informative sessions conducted by healthcare professionals and experts in the field.
2.Interactive Activities: Engage in hands-on activities designed to promote understanding and empathy towards individuals living with these conditions.
3.Support Networks: Connect with individuals and families who are personally affected by Muscular Dystrophy and Cerebral Palsy, providing a platform to share experiences and create a sense of community.
4.Awareness Campaigns: Participate in awareness campaigns to spread knowledge about these conditions and contribute to reducing stigma.
5.Resource Sharing: Access valuable resources, information, and guidance about available treatments, therapies, and support systems.

24/08/2023

Duchenne Drug Approval Breakthrough! Remember, MDFINDIA has been a part of the global DMD community that advocated with ...
13/08/2023

Duchenne Drug Approval Breakthrough! Remember, MDFINDIA has been a part of the global DMD community that advocated with the FDA for this approval.
19.09.2016-Sarepta Therapeutics Announces FDA Accelerated Approval of EXONDYS 51™ (eteplirsen) injection, an Exon Skipping Therapy to Treat Duchenne Muscular Dystrophy (DMD) Patients Amenable to Skipping Exon 51.
Important
• The drug will be useful for DMD children with a confirmed deletion/mutation of Exon 51 only.
• Commercial sale of the drug will be launched soon in the U.S.

Address

H. NO 45 MATA WALI GALI NO 1 NEW CHAUHANPUR KARAWAL NAGAR DELHI

110094

Opening Hours

Monday 08:00 - 22:00
Tuesday 08:00 - 22:00
Wednesday 08:00 - 22:00
Thursday 08:00 - 22:00
Friday 08:00 - 22:00
Saturday 08:00 - 22:00
Sunday 09:30 - 21:00

Telephone

+919319775817

Website

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