Matthew's Building Blocks Fund

Matthew's Building Blocks Fund Matthew is 15&has Adenylosuccinate Lyase Deficiency.This fund is set up to help build an extension s My name is Matthew. I am 10 years old.

I live with my Mummy & Daddy. I love music, lights & exploring objects with my hands. I really enjoy school & my favourite activity is swimming. I was born with a very rare genetic disorder called Adenylosuccinate Lyase Deficiency (ADSL). I am the only child diagnosed with this condition in Ireland so I am very special. ADSL causes profound developmental delays. I am non-verbal and use a wheelchai

r. I also have a visual impairment and epilepsy. My seizures are hard to control and I need lots of care, medication & equipment to help me day-to-day. This page is set up to help to fundraise so my parents can extend their house to provide me with a bedroom and bathroom. At the moment, I sleep in the living room & I take a shower at the swimming pool. Life would be a lot easier if I had all the necessary facilities at my house.

08/06/2020

Matthew is heading in to Phase 2 with a smile.... 😉 Hope everyone is doing well! We are still working hard to keep Matthew safe & well... not going to lie, it's been tough & tiring. I think children with complex needs, like Matthew are going to have a harder battle to get some sort of life back.

The phases are not going to mean the same thing for everyone so be mindful of this & try not to judge 💙

Wash your hands 😉👏

Hope you all had a lovely, safe Easter 🐰🍫😃 We have kept Matthew at home with only contact from Gary & I since March 12th...
13/04/2020

Hope you all had a lovely, safe Easter 🐰🍫😃 We have kept Matthew at home with only contact from Gary & I since March 12th. It's not been easy for us caring alone but Matthew has been a star & is coping well 🤩 Please continue to follow public health guidelines so we can all get through this time healthy & see our families & friends again 🤗 💕 Some pics from last few weeks....

**REMINDER** **THIS PHOTO IS NOT TODAY!!!** But this is for shock factor!! A few years ago, Matthew was taken by ambulan...
23/03/2020

**REMINDER**

**THIS PHOTO IS NOT TODAY!!!** But this is for shock factor!! A few years ago, Matthew was taken by ambulance & minutes after this photo, he was taken into resus as he was vomiting, his airway full of mucus & couldn't maintain his oxygen levels.... Matthew had a "common cold"!! We do not know how Matthew would react to Covid-19. Gary & I are working so hard to keep him safe but with people not following guidelines & spreading the virus about, I don't know how much longer we can keep it away! Please, please STOP going to crowded places with your families, stop letting your kids out to play with others & try to reason with your teens to stay in!! We have to act like we have the virus & maintain physical/social distance. Lives depend on it!

It's a simple message... Please, please listen & just do it where possible!! 🙏💕
15/03/2020

It's a simple message... Please, please listen & just do it where possible!! 🙏💕

I think it's safe to say that Matthew's Building Blocks, the support we got & Matthew's new rooms were the absolute high...
31/12/2019

I think it's safe to say that Matthew's Building Blocks, the support we got & Matthew's new rooms were the absolute highlights of our decade 😄 Life-changing for sure!! 💕
Matthew's health has generally been good in recent months but he hasn't been well over Christmas. Today was a better day though 🤞 Wishing you & yours a very happy & healthy new year 🎉🥂

The struggle is real trying to get out & about with Matthew these days. The timing has to be right with "toileting", fee...
04/08/2019

The struggle is real trying to get out & about with Matthew these days. The timing has to be right with "toileting", feeding & napping. Getting him in & out of the car takes time & energy, not to mention that chair is not exactly light-weight 💪

However, we really do appreciate these lovely, short excursions when we can get them 😄 We had a lovely hour in Newbridge 🌞 And we have an assessment for a powerchair this week... 🤞

10/06/2019

Finally it's happening in Ireland 😊🔨🔧🔩🔗🏡 We hope it gets all the support it deserves!! The struggle is very real for people living in accommodation which is unsuitable for their needs. Matthew's extension was a life-changer & we wish everyone to be as comfortable at home, as he is now 💕

Matthew turned 15 yesterday 🎉🎂🎈 He had a brilliant day celebrating with family ❤ The celebrations were topped off today ...
17/03/2019

Matthew turned 15 yesterday 🎉🎂🎈 He had a brilliant day celebrating with family ❤ The celebrations were topped off today with a visit to Swords fire station where his buddy, Firefighter Al, gave him the grand tour & put him through his paces 😉 🚒 Very grateful to Al & C Watch for making the special visit happen 😃

A very Happy Christmas everyone!!! 🎅🎄🎉🎁
25/12/2018

A very Happy Christmas everyone!!! 🎅🎄🎉🎁

Address

Dublin

Website

Alerts

Be the first to know and let us send you an email when Matthew's Building Blocks Fund posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Shortcuts

Share